Perspectiva parental del cuidado humanizado de la Unidad de Cuidados Intensivos Pediátricos

  1. Eva García-Carpintero Blas 1
  2. Montserrat Ruiz-López 2
  3. Silvia Díaz-Povedano 3
  4. Benito de Haro-Obregón 3
  5. Esperanza Vélez-Vélez 4
  6. Cristina Gómez-Moreno 5
  1. 1 Doctora por la Universidad de Alicante. Facultad de Ciencias de la Vida y la Naturaleza. Universidad Antonio de Nebrija. Madrid (España)
  2. 2 Doctora por la Universidad Europea de Madrid. Centro Universitario SAIUS. Madrid (España)
  3. 3 Grado en Enfermería. Hospital Fundación Jiménez Díaz. Madrid (España)
  4. 4 Doctora por la Universidad Alcalá. Escuela de Enfermería. Hospital Fundación Jiménez Díaz. Madrid (España)
  5. 5 Doctora por la Universidad Complutense de Madrid. Escuela de Enfermería. Hospital Fundación Jiménez Díaz. Madrid (España)
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Revista:
Metas de enfermería

ISSN: 1138-7262

Ano de publicación: 2023

Volume: 26

Número: 10

Páxinas: 7-13

Tipo: Artigo

DOI: 10.35667/METASENF.2023.26.1003082190 DIALNET GOOGLE SCHOLAR lock_openAcceso aberto editor

Outras publicacións en: Metas de enfermería

Resumo

Objective: to describe the humanized Nursing care from the parental perspective at the Paediatric Intensive Care Unit (PICU). Method: husserlian-oriented descriptive phenomenological methodology. The participants were parents of the paediatric population (3-to-6 years old) admitted at the PICU in the Community of Madrid. Convenience and snowball sampling were conducted with nine participants. There was data collection through semistructured interviews based on open questions about topics of interest, with a duration between 40 and 50 minutes. Content analysis was conducted following the method in three stages by Strauss and Corbin. Results: three categories were identified: Disruption of admission at the PICU, Time and space at the Pediatric ICU, and Nursing care at the PICU. Parents showed a major lack of knowledge about the care and tasks conducted at the Intensive Care Units before their children were admitted. In all cases, they felt fear and uncertainty. Parents valued consistency, thorough follow-up and emotional support as an essential part of Nursing care in these units. Conclusions: the effective inclusion of parents still represents a challenge, and there is an insufficient perception of the support by the Nursing team towards them. It must be considered to include families in the care of their children at the PICU, in order to reduce stress and improve the perception of Nursing care.

Referencias bibliográficas

  • Thibodeau BAM, Hryniuk SS, Beaudoin W, Jurasek L, Perry S, Dorfman T, et al. Parent Satisfaction With Pediatric Nurse Practitioner Care in Specialty Services. J Pediatr Health Care. 2022 Sep-Oct; 36(5):457-64. Doi: https://doi.org/10.1016/j.pedhc.2022.04.004
  • Effendy C, Uligraff DK, Sari SH, Angraini F, Chandra L. Experiences of family caregivers of children with cancer while receiving home-based pediatric palliative care in Indonesia: a qualitative study. BMC Palliat Care. 2022 Jun 7; 21(1):104. Doi: https://doi.org/10.1186/s12904-022-00986-5
  • Jerofke-Owen TA, McAndrew NS, Gralton KS, Totka JP, Weiss ME, Fial AV, et al. Engagement of Families in the Care of Hospitalized Pediatric Patients: A Scoping Review. J Fam Nurs. 2022 May; 28(2):151-71. Doi: https://doi.org/10.1177/10748407211048894
  • Vaz LE, Jungbauer RM, Jenisch C, Austin JP, Wagner DV, Everest SJ, et al. Caregiver Experiences in Pediatric Hospitalizations: Challenges and Opportunities for Improvement. Hosp Pediatr. 2022 Dec 1; 12(12):1073-80. Doi: https://doi.org/10.1542/hpeds.2022-006645
  • Astudillo A, Silva P, Daza J. Nivel de estrés en padres de niños hospitalizados en unidades críticas pediátricas y neonatales. Cienc enferm. 2019; 25:18. Doi: https://doi.org/10.4067/s0717-95532019000100214
  • Al Maghaireh DF, Abdullah KL, Chan CM, Piaw CY, Al Kawafha MM. Systematic review of qualitative studies exploring parental experiences in the Neonatal Intensive Care Unit. J Clin Nurs. 2016 Oct; 25(19-20):2745-56. Doi: https://doi.org/10.1111/jocn.13259
  • Bry A, Wigert H. Psychosocial support for parents of extremely preterm infants in neonatal intensive care: a qualitative interview study. BMC Psychol. 2019 Nov 29; 7(1):76. Doi: https://doi.org/10.1186/s40359-019-0354-4
  • Ji J, Yang L, Yang H, Jiang Y, Tang P, Lu Q. Parental experience of transition from a paediatric intensive care unit to a general ward: A qualitative study. J Nurs Manag. 2022 Oct; 30(7):3578-88. Doi: https://doi.org/10.1111/jonm.13716
  • Santos MR, Lopes NQ, Sousa P. OC40-Family participation in caring for hospitalized children - nurses’ perspectives. Nurs Child Young People. 2016 May 9; 28(4):82. Doi: https://doi.org/10.7748/ncyp.28.4.82.s71
  • Denis-Larocque G, Williams K, St-Sauveur I, Ruddy M, Rennick J. Nurses’ perceptions of caring for parents of children with chronic medical complexity in the pediatric intensive care unit. Intensive Crit Care Nurs. 2017 Dec; 43:149-55. Doi: https://doi.org/10.1016/j.iccn.2017.01.010
  • Meert KL, Clark J, Eggly S. Family-centered care in the pediatric intensive care unit. Pediatr Clin North Am. 2013 Jun; 60(3):761-72. Doi: https://doi.org/10.1016/j.pcl.2013.02.011
  • Hill YW. Children in intensive care: can nurse-parent partnership enable the child and family to cope more effectively? Intensive Crit Care Nurs. 1996 Jun; 12(3):155-60. Doi: https://doi.org/10.1016/s0964-3397(96)80486-1
  • Bermejo JC. Qué es humanizar. La dignidad humana como fundamento de la humanización. En: Bermejo JC. Humanizar la asistencia sanitaria. Bilbao: Desclée de Brouwer; 2013.
  • Butler A, Willetts G, Copnell B. Nurses’ perceptions of working with families in the paediatric intensive care unit. Nurs Crit Care. 2017 Jul; 22(4):195-202. Doi: https://doi.org/10.1111/nicc.12142
  • Frechette J, Lavoie-Tremblay M, Kilpatrick K, Bitzas V. When the paediatric intensive care unit becomes home: A hermeneutic-phenomenological study. Nurs Crit Care. 2020 May; 25(3):140-8. Doi: https://doi.org/10.1111/nicc.12491
  • Roets L, Rowe-Rowe N, Nel R. Family-centred care in the paediatric intensive care unit. J Nurs Manag. 2012 Jul; 20(5):624-30. Doi: https://doi.org/10.1111/j.1365-2834.2012.01365.x
  • Lambert C. Edmund Husserl: la idea de la fenomenología. Teología y vida. 2006; 47:517-29. Doi: https://doi.org/10.4067/S0049-34492006000300008
  • Creswell JW, Poth CN. Qualitative inquiry and research design (Choosing among Five Approaches). 4th ed. Thousand Oaks, CA: Sage; 2018.
  • Solano MC. Fenomenología-Hermenéutica y Enfermería. Cultura de los cuidados. 2006; 19:5. Doi: https://doi.org/10.14198/cuid.2006.19.01
  • Herrera Floro T. Ansiedad en la hospitalización del paciente pediátrico. Rev Enferm Salud Ment. 2016; 4:15-21. Doi: https://doi.org/10.5538/2385-703X.2016.4.15
  • Palacios-Ceña D, Corral Liria I. The basics and development of a phenomenological research protocol in nursing. Enferm. Intensiva 2010; 21:68-73. Doi: https://doi.org/10.106/j.enfi.2009.11.003
  • Archibald MM, Ambagtsheer RC, Casey MG, et al. Using zoom videoconferencing for qualitative data collection: perceptions and experiences of researchers and participants. Int J Qual Methods 2019; 182:1-8. Doi: https://doi.org/10.1177/1609406919874596
  • Strauss A, Corbin J. Basics of qualitative research: grounded theory procedures and techniques. Newbury Park: Sage; 1998.
  • Carrillo Pineda M, Leyva-Moral JM, y Medina JL. El análisis de los datos cualitativos: un proceso complejo. Index Enferm 2011; 20:96-100.
  • Lincoln YS, Lynham SA, Guba EG. Paradigmatic controversies, contradictions, and emerging confluences, revisited. En: Denzin NL, Lincoln YS (eds.), Handbook of qualitative research. 4th ed. Thousand Oaks, CA: Sage Publications; 2011, p. 158-74.
  • Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007 Dec; 19(6):349-57. Doi: https://doi.org/10.1093/intqhc/mzm042
  • Board R. Father stress during a child’s critical care hospitalization. J Pediatr Health Care. 2004 Sep-Oct; 18(5):244-9. Doi: https://doi.org/10.1016/j.pedhc.2004.06.003
  • Butler A, Copnell B, Willetts G. Family-centred care in the paediatric intensive care unit: an integrative review of the literature. J Clin Nurs. 2014 Aug; 23(15-16):2086-99. Doi: https://doi.org/10.1111/jocn.12498
  • Sansone V, Cancani F, Gagliardi C, Satta T, Cecchetti C, de Ranieri C, et al. Narrative diaries in the paediatric intensive care unit: A thematic analysis. Nurs Crit Care. 2022 Jan; 27(1):45-54. Doi: https://doi.org/10.1111/nicc.12680
  • Benzies KM, Shah V, Aziz K, Isaranuwatchai W, Palacio-Derflingher L, Scotland J, et al.; Alberta FICare Level II NICU Study Team. Family Integrated Care (FICare) in Level II Neonatal Intensive Care Units: study protocol for a cluster randomized controlled trial. Trials. 2017 Oct 10; 18(1):467. Doi: https://doi.org/10.1186/s13063-017-2181-3
  • Naef R, Brysiewicz P, Mc Andrew NS, Beierwaltes P, Chiang V, Clisbee D, et al. Intensive care nurse-family engagement from a global perspective: A qualitative multi-site exploration. Intensive Crit Care Nurs. 2021 Oct; 66:103081. Doi: https://doi.org/10.1016/j.iccn.2021.103081
  • Hamilton R, Kleinpell R, Lipman J, Davidson JE. International facilitators and barriers to family engagement in the ICU: Results of a qualitative analysis. J Crit Care. 2020 Aug; 58:72-7. Doi: https://doi.org/10.1016/j.jcrc.2020.04.011
  • Giambra BK, Stiffler D, Broome ME. An integrative review of communication between parents and nurses of hospitalized technology-dependent children. Worldviews Evid Based Nurs. 2014 Dec; 11(6):369-75. Doi: https://doi.org/10.1111/wvn.12065
  • Roets L, Rowe-Rowe N, Nel R. Family-centred care in the paediatric intensive care unit. J Nurs Manag. 2012 Jul; 20(5):624-30. Doi: https://doi.org/10.1111/j.1365-2834.2012.01365.x
  • Smoleń E, Ksykiewicz-Dorota A. Profesjonalizm pielęgniarek jako element oceny satysfakcji rodziców/opiekunów dzieci z opieki pielęgniarskiej [Nurses’ professionalism as a component of evaluation of parents/caregivers satisfaction with nursing care]. Med Pr. 2015; 66(4):549-56. Doi: https://doi.org/10.13075/mp.5893.00165
Fonte de datos: Dialnet